Media
Making TTC Announce Bus/Subway Stops for Blind Riders
In his January 24, 2014 lecture to Osgood Hall Law School's Disability Rights Intensive course of Prof. Roxanne Mykitiuk and Marion MacGregor, David Lepofsky describes his 13-year saga to force the Toronto Transit Commission to audibly announce all subway, bus and streetcar routes to accommodate the needs of blind passengers like himself. This included of advocacy and litigation including his 2 discrimination cases at Ontario's Human Rights Tribunal against the TTC. From 1994-2005, Lepofsky chaired the Ontarians with Disabilities Act Committee. From 2009 to the present, he chaired the successor Accessibility for Ontarians with Disabilities Act Alliance. www.odacommiteee.net WWW.aodaalliance.org Twitter @davidlepofsky and @aodaalliance Facebook: http://www.facebook.com/pages/Accessibility-for-Ontarians-with-Disabilities-Act-Alliance/106232039438820 To get AODA Alliance email updates ask aodafeedback@gmail.com For all lectures in this series and related links visit http://www.aodaalliance.org/video/default.asp
Disability Law Intensive Program
The Disability Law Intensive (DLI) is a clinical intensive program offered by Osgoode Hall Law School in partnership with ARCH Disability Law Centre. The DLI program allows students to engage in individual client and systemic advocacy. Students enrolled in the DLI program have a demonstrated commitment to social justice and to the eradication of barriers facing people with disabilities, and embrace the understanding of social and rights-based models of disability.
The “Healthy” Embryo: Social, Biomedical, Legal and Philosophical Perspectives
by Roxanne Mykitiuk, Jeff Nisker, Francoise Baylis, Isabel Karpin and Carolyn McLeod
Cambridge University Press
9780521748131
This multidisciplinary book explores the concept of a 'healthy' embryo, its implications on the health of children and adults, and how perceptions of what constitutes child and adult health influence the concept of embryo 'health'. The concept of human embryo health is considered from preconception to pre-implantation genetic diagnosis to recent foetal surgical approaches.
Public Nature of Private Violence: The Discovery of Domestic Abuse
by M A Fineman & R Mykitiuk
Routledge
Reading the Future? : Legal and Ethical Challenges of Predictive Genetic Testing
by Roxanne Mykitiuk, Trudo Lemmens and Mireille Lacroix
Les Editions Themis
9782894002292
Predictive genetic tests can be of significant value for patients and for public health strategies, but many ethical and legal issues are associated with the development and use of such tests. This book identifies and examines these issues and makes recommendations that will be of value to policy makers, regulators and law reformers. It is also a source of information for all those interested in the important ethical, social and legal issues raised by the new genetics.
Ethics of the Body
by Margrit Shildrick and Roxanne Mykitiuk
The MIT Press
Wrongful birth litigation and prenatal screening
Published by Canadian Medical Association Journal
2008 Canadian clinicians must be aware of new standards of care resulting from national clinical practice guidelines, both to ensure best practice and to avoid malpractice litigation. Clinical practice guidelines can reduce successful malpractice actions through physician education and they may be used in court as evidence that the standard of care was met.
Understanding the Use of 'Genetic Predisposition' in Canadian Legal Decisions
Published by McGill Journal of Law and Health
2013 Since the advent of the Human Genome Project in 1989, the ethical, legal, and social implications inherent in future genetic science and its applications have worried researchers and scholars in law and ethics. Concern that the results of genetic testing might be used to discriminate against particular individuals and groups of individuals has been paramount, prompting calls for specific legislation to protect against genetic discrimination. Against this backdrop we sought to investigate instances of genetic discrimination in Canadian legal decisions.
The Canadian Assisted Human Reproduction Act: Protecting Women's Health While Potentially Allowing Human Somatic Cell Nuclear Transfer into Non-Human Oocytes
Published by The American Journal of Bioethics
2007 Open Peer Commentaries.
URL: http://www.tandfonline.com/doi/abs/10.1080/15265160601111719?journalCode=uajb20
Notions of Reproductive Harm in Canadian Law: Addressing Exposures to Household Chemicals as Reproductive Torts
Published by Canadian Journal of Comparative and Contemporary Law
2015 This article examines the potential for prenatal exposure to harmful chemicals to be approached as reproductive torts as opposed to toxic torts. Focusing on two groups of household chemicals – brominated flame retardants and phthalates – this article identifies the ways in which prenatal injury claims and birth torts (i.e. wrongful pregnancy, wrongful birth, and wrongful life cases) can inform future litigation regarding prenatal exposures to risky household chemicals.
Going out on a limb: prosthetics, normalcy and disputing the therapy/enhancement distinction
Published by Medical Law Review
2008 The development of genetic technologies, nano-technologies and technologies related to artificial intelligence have provoked discussion about the different uses to which they may be put; namely, their potential for therapeutic and non-therapeutic use.
URL: http://digitalcommons.osgoode.yorku.ca/cgi/viewcontent.cgi?article=2168&context=scholarly_works
Biography
Roxanne Mykitiuk is an Associate Professor at Osgoode Hall Law School, York University where she teaches disability, health and family law. She is the Director of the Disability Law Intensive clinical program. From 1990-92 she was Senior Legal Researcher for the Canadian Royal Commission on New Reproductive Technologies. From 2002-2006 she was a member of the Ontario Advisory Committee on Genetics and from 2005-2008 she was a member of the Ethics Committee of the Society of Obstetricians and Gynecologists of Canada. In 2009 Mykitiuk was scholar in residence at the Law Commission of Ontario working on the Disability and Law Project. She is currently on the Board of Directors of ARCH Disability Law Clinic. Mykitiuk was the Chair of York University’s Senate from 2013-2015. She is an active, engaged and collaborative researcher. She is the author/ co-author of numerous articles, book chapters and books investigating the legal, ethical and social implications of reproductive and genetic technologies and the legal construction and regulation of embodiment and disability. More recently her research has begun to create and investigate arts-based methods – digital stories and drama-based narratives – as a means of challenging and re-representing conceptions of disability. She is completing work exploring the reproductive health and intergenerational justice implications of exposures to ubiquitous household toxics, especially in relation to conceptions of harm using a debility and disability justice framework. In another project, she analyzes Article 12 of the CRPD, collectively and collaboratively exploring the meaning of self-determination in health care decision making with a woman who calls herself a “schizophroenist”. In a recent SSHRC project, she is using legal research and digital story making to investigate episodic disability in the workplace and assist employers to adopt policies that are accommodating to the needs of variously positioned workers with episodic disabilities. Furthermore, Mykitiuk is part of an interdisciplinary team carrying out a program of research that archives, incubates, exhibits, disseminates, studies and provides access to disability art produced by disabled, mad, fat and aging/ed people through research creation activities aimed at interrogating the claim that access to art will provide disabled people with greater access to a fulfilled life beyond how full and equal access is imagined and protected under the law.
Additional Titles and Affiliations
Health Law Institute University of Alberta : Research Associate
Centre for Intellectual Property Policy McGill University : Associate Member
Past Talks
Playing up Citizen Involvement: An Experiential Workshop in the Use of Theatre for Policy Development
Nobody's Child, Everybody's Children: An International Conference on New Reproductive and Genetic Technologies
Nanaimo, BC, May 24, 2007
Privacy and Other Ethical and Legal Issues in Emergency Contraception in Canada
2nd Gynaecology Ontario CME Programme
Toronto, ON, April 8, 2006
Nonhuman Animal-Human Hybrid Embryo Research in Canada: Ethical and Legal Considerations
International Conference on the "Healthy" Embryo
London, ON, November 15, 2007
Gender Equity in Health Research in Canada
30th International Congress on Law and Mental Health
Padua, Italy, June 29, 2007
Characterizing the PGD Embryo: A Review of Recent Policy Positions
Ethics Matters: Joint Ethics Conference
Toronto, ON, June 1, 2007
Research Grants
Women’s Health: An Impact Assessment of the Canadian Biotechnology Strategy
Organization: Medical Research Council of CanadaGrant amount: 25000
Details:
1999 Co-Investigator
The Legal Regulation and Construction of the Gendered Body and of Disability in Canadian Health Law and Policy
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 25000
Details:
1998” (year 1) Principal Investigator
The Nexus of Law and Biology for Emerging Technologies
Organization: Australian Research Council, Linkage-International AwardGrant amount: 51203 AUS
Details:
2003 Chief Investigator
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 1200
Details:
2005
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 1619
Details:
2004
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 800
Details:
2003
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 800
Details:
2002
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 800
Details:
2001
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 700
Details:
2000
Travel Grant
Organization: Social Sciences and Humanities Research CouncilGrant amount: 900
Details:
1997
Travel Grant
Organization: Social Sciences and Humanities Research CouncilDetails:
1996
Travel Grant
Organization: University of AlbertaDetails:
1994 Central Research Fund
Travel Grant
Organization: University of AlbertaDetails:
1993 Central Research Fund
Voices of Individuals: Collectively Exploring Self-Determination
Organization: European Research CouncilDetails:
2016 Insight Grant. I have been selected to work as part of an international team as a respondent to collaborate with a person who has a lived experience of schizophrenia to co-author a critical response to her experience grounded in Article 12 of the CRPD. The project is housed at the Centre for Disability Law and Policy Institute for Lifecourse and Society, Galway, Ireland. PI: Eilionoir Flynn.
Women, Health and the Canadian Biotechnology Strategy: Synthesizing and Disseminating Results
Organization: Women’s Health Bureau, Health CanadaGrant amount: 1500
Details:
2001 Principal Investigator
Women, Health and the Canadian Biotechnology Strategy: Synthesizing and Disseminating Results
Organization: Women’s Health Bureau, Health CanadaGrant amount: 9000
Details:
2000 Principal Investigator
Seed Funding
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 5300
Details:
1997
The Legal Regulation and Construction of the Gendered Body and of Disability in Canadian Health Law and Policy
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 22000
Details:
1999 (year two) Principal Investigator
The Construction of Disability and Risk in Genetic Counselling Discourse
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 55675 over 2 years
Details:
1999 Co-Investigator
The Canadian Biotechnology Strategy and Law: Implications for Gender and Health
Organization: Social Sciences and Humanities Research CouncilGrant amount: 6100
Details:
1999 SSHRC Special Initiative Grant: Grants to Untenured Faculty
Summer Research Fellowship
Organization: Borden, Ladner and GervaisGrant amount: 10000
Details:
2006 Two fellowships of $10,000 each are offered by the national law firm, Borden Ladner Gervais LLP, to promote excellence in legal scholarship.
Structural and Functional Annotation of the Human Genome for Disease Study
Organization: Genome CanadaGrant amount: 22.2 million over four years. GE3Ls Project, $240,000 over four years
Details:
2005 I am Theme Leader for “Shifting Conceptions of Health, Disease, Illness, Normalcy and Disability?”
Sharing Knowledges of Risk: Citizen Engagement with Science, Law and Biotechnology
Organization: Social Sciences and Humanities Research Council and Law Commission of Canada, Relationships in Transition competitionGrant amount: 40000
Details:
2004 Principal Investigator
Research Grant
Organization: University of AlbertaDetails:
1994 Central Research Fund
Research Grant
Organization: University of AlbertaDetails:
1994 Central Research Fund (Vice-President's Discretionary Fund)
Reproductive Autonomy: Legal and Policy Choices
Organization: Social Sciences and Humanities Research Council and Law Commission of CanadaGrant amount: 20000
Details:
2003 Governance and Freedom of Choice competition Collaborator
Regulating Relations: forming families inside and outside law's reach
Organization: Australian Research CouncilGrant amount: 421,500.00 over 4 years
Details:
2014 Project Grant with J. Millbank, I. Karpin, E. Jackson and A. Stuhmcke
Osgoode Hall Research Fellowship
Organization: Osgoode Hall Law SchoolDetails:
2006
Operating Grant
Organization: Canadian Institutes of Health ResearchGrant amount: 371.202 over 3 years
Details:
2011 Nominated PI. Carla Rice ($371.202 over 3 years) I am one of 6 PI’s on this grant.
Monitoring the Human Rights of People with Disabilities in Canada
Organization: Social Sciences and Humanities Research CouncilGrant amount: 998,000, over 5 years
Details:
2006 Applicant: Marcia Rioux. I am a co-applicant and the University Co-Leader for Theme III - Law and Policy
Law’s Slow Violence
Organization: Osgoode Hall Law SchoolGrant amount: 5000
Details:
2012 Harry Arthurs Collaborative Faculty Research Grant. Workshop with Rob Nixon: “Law’s Slow Violence.” With Dayna Scott, Ruth Buchanan, Sonia Lawrence and Peer Zumbansen
Grant to Prepare National Strategic Workshop on Women’s Health and the New Genetics
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 15000
Details:
1998 Principal Investigator
Gender Inequities in Health Research: Towards a New Regulatory Framework
Organization: Australian Research CouncilGrant amount: 300,000 over three years
Details:
2005 With Belinda Bennett (Principal Investigator), Isabel Karpin, Wendy Rogers and Patty Peppin
Genetics and Breast Cancer
Organization: Social Sciences and Humanities Research CouncilGrant amount: 3000
Details:
1997 Small Research Grant
Grant to Prepare National Strategic Workshop on Women’s Health and the New Genetics
Organization: National Network on Environments and Women’s Health (NNEWH)Grant amount: 15000
Details:
1998 Co-Investigator
Health in an Unequal World: Global Ethics and Policy Choices
Organization: Canadian Institutes of Health ResearchGrant amount: 38,026 over 3 years
Details:
2006 Co-Applicant
From Invisibility to Inclusion: Developing and Evaluating Policies and Practices to Facilitate the Inclusion of Workers with Episodic Disabilities in Ontario Workplaces
Organization: Social Sciences and Humanities Research CouncilGrant amount: 297,000 over 4 years
Details:
2016 I am one of 2 co-applicants on this grant. There are 7 collaborators.
Exploring Key Issues of Sex/Gender and Disability in Genomics
Organization: Women’s Health Bureau, Health CanadaGrant amount: 10000
Details:
2005 Principal Investigator
Experiential Education Development Grant
Organization: Osgoode Hall Law SchoolGrant amount: $4000
Details:
2013 Disability Law Intensive Program, with Marian MacGregor
Effects of Brominated Flame Retardants on Reproductive Health and Social, Legal and Ethical Aspects
Organization: CIHRGrant amount: 2.5 million over five years
Details:
2009 Team Grant. Legal, Ethics and Social Aspects team with shared with co-applicants Profs. J. Nisker and D.Scott
Curriculum Development Grant – family law
Organization: Osgoode Hall Law SchoolGrant amount: 2000
Details:
2008 With Susan Drummond and Shelley Kierstead
Curriculum Development Fund Award
Organization: Centre for Innovation Law and PolicyGrant amount: 5000
Details:
2004
Beyond the Margins of (Dis)Ability: Enabling Women With Disabilities to Achieve Health
Organization: SSHRCGrant amount: 87500 over 3 years
Details:
2004 Standard Research grant. Principal Investigator
Canadian Program on Genomics and Global Health
Organization: Genome CanadaGrant amount: 4.5 million over 3 years
Details:
2001 (P.I. Peter Singer) Investigator
Bodies in Translation: Activist Art, Technology, and Access to Life
Organization: Social Sciences and Humanities Research CouncilGrant amount: 2,500.000 over 7 years
Details:
2016 Partnership Grant. I am a co-applicant on this grant and a member of the Management Committee and Conceptual Panel. This application was ranked 1st by SSHRC.