Carrie Anna McGinn
Patient Advocate / Patient Partner in Research, Advocate / Long COVID support group / ME Advocacy Project / Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network (ICanCME)
Long COVID, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), post-infectious illness, post-viral illness, patient support, COVID support groups, patient advocacy, COVID research network, health research
Media
Quebec COVID longhauler demands more support
Quebec COVID-19 long-haulers call for treatment and support
Canadian Long COVID Awareness Day
COVID-19 Resources CanadaTelevision
These Five Women Are Helping Doctors Crack the Long-Covid Mystery
Chronic exhaustion, derailed lives and no way out. This is long COVID.
More resources needed to treat long COVID: expert
Biography
Carrie Anna McGinn uses her experience of living with Long COVID, postural orthostatic tachycardia syndrome and myalgic encephalomyelitis to advocate for recognition, research and adapted care for post-infectious illnesses. McGinn holds a master’s degree in Community Health. Before becoming ill, she worked for over a decade in the fields of health research and evaluation, in the public and not-for-profit sectors. McGinn co-founded the bilingual, science-driven support group “Covid longue Québec Long Covid” for people with Long COVID living in Quebec and administers the “J’ai eu la COVID-19” support group for people in Quebec who have been infected with COVID-19 (acute and Long COVID). She is also a member of the ICanCME Research Network and its Medical Education and Trainee Development working group, as well as a board member of the Association québécoise de l’encéphalomyélite myalgique (AQEM) and a patient partner for ongoing Canadian Long COVID research and initiatives.